Wednesday, March 23, 2011

A New Response to "How Long Do I Have?"

Anyone in hospice service will tell you they have been asked by a family or a patient the question "how long?" and we all have our own personalized responses which most often include?

No one knows without a doubt how long they will live.  I could leave this room and be in an accident and lose my life long before you lose yours.

Once familiar with their nurse, a family may here that the time is drawing near.  "Better call in the family".

I am completely filled with gratitude and awe for the words spoken by a physician's assistant recently to a patient and his family when confronted with the "how long?" question.

 

The patient, male, middle aged, and not ready to hear the harsh answer asked the P.A. after a lengthy discussion about his cancer how long it would be (before he dies).  The family sat still and the patient waited knowingly and yet also displayed reserve and lack of knowing. 

"When you were born, your mother carried you for 9 months before you came into this world.  It's time now, son, for you to begin the journey back to the source.  It is what it is and you need to prepare to go back there."

While the trajectory of the illness gives the doctor a great clue to how long someone will live, it does not address the appropriate communication to family and the patient at different intervals of the intial news. 

Whatever your opinion of this response, I believe there will come a time when a family and patients would find great comfort in such sentiments.

After all, we are all returning to the source; plant, animal, or human we are in that wonderful cycle of life and I am grateful for those who hold our hands on this journey.

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Wednesday, March 9, 2011

The Franklin Press Online Macon County, North Carolina

vote yes on a hospice house..http://bit.ly/elwEre

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Contest for Subscribers | Carebuzz

Contest for Subscribers -->

THANK YOU FOR YOUR INTEREST IN THE CAREGIVER OF THE MONTH CONTEST!

You may have already entered the contest– in which case, please rest assured that once you have entered the contest, your name will be “in the hat” indefinitely: you are eligible to win the award each month, and you are automatically entered to win the Kindle. If you’d like to enter a new caregiver to be considered for the contest, please do so by following the instructions below!

Carebuzz knows that being a family caregiver is a thankless role! That’s why we’re celebrating caregivers on our site and providing you the opportunity to nominate someone in your community, family or yourself who exemplifies the definition of a ‘family caregiver’ and to win the honored Caregiver of the Month Award! Each month, we will select a caregiver to be featured on the Carebuzz site, and the winner will receive a special gift to honor the work they do. Each quarter, all names submitted will have a chance to win a free Kindle! That’s right, a Kindle! As we have learned from an AARP report on caregiving, there are over 65 million potential nominations out there in the United States. So, who do you think deserves to be honored?

How it works:

1. Submit a Nominee for the Family Caregiver of the Month Award by sending an email to carol @ carebuzz.com
2. In your email, use the subject line “Caregiver Contest Entry”
3. In 25 words or less tell us why this family caregiver deserves recognition and be sure to include the nominee’s name and email address
4. We will draw a name out of the “hat” to select the featured caregiver on the 1st of each month
5. Enter one time and we will keep your name in the “hat” for each monthly drawing, as well as the quarterly Kindle drawing!

Winner Notification:

We will contact each month’s winner by email to ask for a photo and mailing address so that we can send you your special gift!


Posted via email from Hospice Volunteer Training Online

Tuesday, March 8, 2011

Volunteers are at the heart of hospice

LakeNormanMagazine.com

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  • Robert Lahser

    Deb Getz sings "Amazing Grace" to hospice patient Annie Brown, 77, at Levine & Dickson Hospice House in Huntersville.

  • ROBERT LAHSER - rlahser@charlotteobserver.com

    Deb Getz with hospice patient Annie Brown, 77, at Levine & Dickson Hospice House in Huntersville.

  • ROBERT LAHSER - rlahser@charlotteobserver.com

    Deb Getz sings "Amazing Grace" to hospice patient Annie Brown, 77, at Levine & Dickson Hospice House in Huntersville. Deb Getz is a volunteer who sings to hospice patients as a form of music therapy.

How sweet the sound

By Ladianne Mandel

Posted: Tuesday, Mar. 08, 2011

Loss, we all discover, is an inevitable part of being. Birthdays, graduations, weddings, the welcoming of new family members. And the passing of friends and loved ones. The events that take place between the point of our advent and the point of our departure construct for us the fabric of life. Not all of life’s moments are steeped in joy. Even so, some of the most challenging times can be eased with the gentle application of an art form with us almost since the beginning of our kind.

Deb Getz started singing in her church choir when she was just 5 years old. Musical theatre in high school and exploration of music at the college level followed. But after venturing on to sing with Carolina Voices, jazz ensemble Impromptu, and delivering her rendition of the American National Anthem at various sporting events, Getz allowed her voice to grow silent – until she began volunteering at the Levine & Dickson Hospice House in June of 2010.

“I’d lost two people very close to me – one a dear friend and the other my oldest son – within the last few years. Hospice was so helpful. Their services resonated with me. I was inspired to step up and make a call to see if I could volunteer,” says Getz.

One day, while still in volunteer training, Getz says, the topic of singing to patients arose in conversation. “There was a patient who was restless that day and one of the nurses said the patient would benefit. I pulled out a hymnal and went in. The patient was non-responsive. She was in her 90s and she had an unrepaired hip fracture. The staff were keeping her as comfortable as they could,” Getz recalls. “I hadn’t sung in a really long time and had no idea what I was going to sound like when I opened my mouth. I knew if I was going to have an accepting audience she would be it. I started singing Amazing Grace and realized I could feel my voice filling the room. The patient opened her eyes and looked at me. I kept on singing and gave her all of my energy, focused on her, and let the music do what it was supposed to do. I watched her face changed while I was there and when I finished I could tell she was asleep. There was a peacefulness about it.”

Jan Kurtz’s family experienced, first hand, the power of Getz’s gifts. “My sister, Kathryn Cloninger, who died of lung cancer in November 2010, went into the Hospice House on October 4th, 2010. She always thought she could do things on her own but eventually found out she couldn’t. Our sister, Joyce Webb from Connecticut, was the first of us to visit Kathryn at Hospice House and experience the work that Deb does,” recalls Kurtz.

Webb told Kurtz she had to hear Deb Getz singing to Kathryn. Kurtz says that the family experienced connections with Deb Getz on many levels. “I heard Deb sing…she has the voice of an angel, and this way with people I can’t describe in words. Her voice and her actions are amazing.”

During the time Cloninger was at the Levine & Dickson Hospice House, Getz sang to her once per week. “I heard her sing three different times,” said Kurtz. “And a couple of times, my sister Joyce sang with Deb. There was one point when my sister, Kathryn, was coherent and requested some songs. Deb and Joyce ended up getting a duet going. It was beautiful. Deb melted Kathryn’s heart with her voice and her actions. I have never experienced anything like that before in my life. I was so grateful to be a part of it.”

Kurtz noted that she was incredibly impressed by all of the volunteers at Levine & Dickson Hospice House. The assistance of a significant body of volunteers makes it possible for Hospice and Palliative Care Charlotte Region to provide care and services for approximately 1,000 patients per day wherever they call home, says Christine Brown, senior director of marketing for the organization. “We have 16 beds at the Hospice House, but we serve people in their own houses as well. Hospice of Lake Norman serves the needs of that area. And there is a regional office in Cabarrus County as well.”

“I don’t think people realize how important it is for patients to have a team of specialists helping them through the end of life process. People often comment that we offer ‘end of life dream teams’ – we have doctors, nurses, chaplains, grief counselors, nurse aids, and volunteers. These volunteers and specialists enable us to help people transition from this world,” says Brown.

When asked if she would recommend that people take advantage of the services offered by Hospice House, and particularly, the talents offered by Deb Getz, Kurtz says, “Absolutely. The feeling you get when you walk through the doors is genuine. The teamwork of all of the people who are a part of the organization is amazing. It’s wonderful. I would suggest anyone consider using hospice services, even if the process begins at home.”

And how does Deb Getz feel about being a part of such a team? “All of the volunteers at Hospice House are amazing. Every time I leave there, I find myself saying, ‘Wow. They are wonderful.’ And I have to say that if I could sing to dying patients every day I would.”

More information

Like Deb, many volunteers with Hospice & Palliative Care Charlotte Region share their musical talents by singing or playing musical instruments, such as the harp, guitar, saxophone, bass, flute and clarinet. More volunteers are welcome. Contact the volunteer services department at 704-335-3578 for more information.

For more information about Hospice & Palliative Care Charlotte Region, go to www.hpccr.org or call 704-375-0100.

Posted via email from Hospice Volunteer Training Online

Sunday, February 27, 2011

Caring for people is passion of new hospice executive - The Pueblo Chieftain: Local

Caring for people is passion of new hospice executive

Sangre de Cristo Hospice is a homecoming for Carmen Ermel.

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Carmen Ermel

Posted: Sunday, September 19, 2010 12:00 am

Caring for people is passion of new hospice executive By LORETTA SWORD | lorettas@chieftain.com The Pueblo Chieftain | 0 comments

Carmen Ermel has spent most of her professional life helping older people live independently and adapt to some of the losses that aging guarantees.

Her newest job involves helping people die — with dignity, and without some of the burdens that dying so often brings along on its unpredictable journey.

Ermel took over July 26 as chief executive officer of Sangre de Cristo Hospice. It was a homecoming in several ways.

The 58-year-old grew up in Beulah and graduated from South High School. She started college at the University of Northern Colorado in Greeley, then transferred to the University of California at San Bernadino, graduating with degrees in business administration and social science.

She eventually returned to Pueblo as a community relations representative for a local nursing home.

That was 20 years ago, when the concept of hospice care was just beginning to take hold nationwide. Pueblo was ahead of the national curve with Sangre de Cristo Hospice, founded primarily by longtime CEO Joni Fair, who retired in January.

Ermel said she had contact with hospice volunteers at the nursing home, and decided to get some training from Fair so she would understand how the two organizations could better serve Pueblo's most vulnerable citizens.

"That was my introduction to hospice, and I've been connected to hospice services throughout my career since then," she said. That connection continued in her next job as director of the Area Agency on Aging for Custer, Chaffee, Fremont and Lake counties.

 Ermel's most recent position was as senior vice president of operations for Spectrum Retirement Communities, an organization with 1,000 employees that operates retirement and assisted-living communities and Alzheimer's care facilities in seven states.

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"I coordinated with hospices in each market, so when our seniors needed services they could stay in the assisted-living community rather than having to move to a skilled nursing facility," Ermel said.

She had always planned to return to Southern Colorado, she said, and she heard about the opening at the Pueblo hospice right about the time she had begun pushing herself to finally make the move.

"It was always my goal to get back down here permanently. I also had reached a point where I wanted to be involved in 'total service' for seniors — something that didn't involve real estate," she said.

Ermel counts among her goals continued outreach in all of the communities the organization serves to provide education about hospice services and recruit more volunteers.

Finding new funding streams also will be imperative, with Medicare reimbursement for hospice care due to take major cuts over the next decade.

Taking the reins of an organization that has flourished for nearly 30 years under the leadership of its passionate founder is both an honor and a welcome challenge, Ermel said.

Fair plans to remain connected to hospice as a volunteer, and Ermel said she's been generous with her knowledge and experience.

"She's very graciously opened her mind and her heart to help," she said.

"I'm very excited to really get started applying my experience, my skills in collaborative efforts, and my energy to this job. Failure is not an option. This is such an important and humbling service that we provide.

 "It's a position I don't think anyone should pursue as a paycheck. It's truly a calling and a mission, and it's a humbling honor to be selected."

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Thursday, February 24, 2011

Overlake gets grant to implement palliative care - Bellevue Reporter


The Overlake Hospital Foundation has received a $150,000 grant from the Regence Foundation to implement a hospital-based palliative care program at Overlake Hospital Medical Center. Palliative care is a medical specialty geared toward helping seriously ill patients find relief from the symptoms of their disease.
The Regence grant will help Overlake implement its palliative care program, planned with the help of foundation-provided training from the Palliative Care Leadership Center (PCLC) and a financial grant in 2010. PCLC is a national training and mentoring initiative to help hospitals start and expand high-quality palliative care programs.
“The Regence Foundation’s grant enables us to implement a Palliative Care Consult Service for patients and their families coping with advanced illness and in need of symptom management,” said Cathy Whitaker, vice president of patient care services at Overlake.
She estimated about 200 patients a year would benefit from the service, delivered by physicians, nurses and support staff including social workers, chaplains, pharmacists, care management and physical therapy.

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